A benefit for Corry resident Pennie Mussi-Wood will be held Thursday from 7 to 9 p.m. at St. Elizabeth Parish Center.
Mussi-Wood suffers from a rare medical condition called Arnold Chari Type 1 Malformation of the Brain.
Funds raised from the benefit, which is being sponsored by Pampered Chef, will go toward expenses for Mussi-Wood to travel to see a specialist, Dr. John Oro in Aurora, Colo. She has an appointment with Oro on April 14 and 15.
Mussi-Wood hopes in addition to raising money, she can raise awareness about her condition. She will be present Thursday to answer questions and speak with residents.
St. Elizabeth Parish Center has donated the use of their facility for Thursday’s benefit.
“This is an opportunity for the communities to support me, my cause, and awareness that is a vital need that must be met,” Mussi-Wood said. “I invite and am willing to answer any questions that anyone might have.”
Arnold Chari Type 1 Malformation of the Brain is a neurological medical condition that is being misdiagnosed more and more each day, Mussi-Wood said. Symptoms may include severe headaches, visual disturbances, and excruciating nerve and muscle pain in the head, neck, arms, shoulder and back.
The condition is sometimes misdiagnosed as autism, MS, Fibromyalgia, chronic migraines or chronic fatigue.
The only way that Chari can be diagnosed is by a neurological radiologist or neurosurgeon who knows what they are looking for, Mussi-Wood said. The only cure for Arnold Chari Type 1 Malformation of the brain is surgery.
Trained specialists to diagnose and treat this condition are very rare, Mussi-Wood said.
In addition to Thursday’s benefit, an account has been established for Mussi-Wood at PNC Bank in Corry for community members to donate to her expenses.
Anyone who would like to contact Mussi-Wood may do so by e-mail at firstname.lastname@example.org.